Unstoppable Strides: Navigating Runner's Dystonia

Join Julie and JoJo for information, exploration, stories of hope and real talk related to running with dystonia.

Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running. Some are affected by walking and cycling as well.

Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.

Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.

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All Episodes

Unstoppable Strides: Navigating Runner's Dystonia

Deep Brain Stimulation (DBS)

April 02, 2026 • Julie Bergfeld • Season 2 • Episode 12

0:00 | 36:42

Julie talks with Stacey Ginesin and Dr. Iahn Cajigas about DBS. We cover a lot of territory here, including how to get the procedure approved by Insurance, when DBS becomes a viable option, success rates, risks and Stacey's experience with dystonia and DBS surgery.

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The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.

You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com