Unstoppable Strides: Navigating Runner's Dystonia
Join Julie and JoJo for information, exploration, stories and real talk related to running with dystonia.
Runner’s dystonia is a type of repetitive exercise dystonia that is brought on by running.
Dystonias are a class of movement disorders marked by involuntary muscle contractions in one or more parts of the body, depending on the type of dystonia.
Runner’s dystonia is considered task-specific, which means that it only occurs when doing a repetitive motion—in this case, the repetitive nature of the running gait cycle.
Give us a listen if you'd like to learn more.
One small favor... if you like these podcasts and want to support the show, could you buy us a cup of coffee through a donation to support our hosting and producing fees?
You can email us here if you're interested in collaborating or contributing - runnersdystonia@gmail.com
Unstoppable Strides: Navigating Runner's Dystonia
Episode 11 with Kirsten Jackson - on DBS
We talk with Australian runner Kirsten Jackson on her progress with dystonia and DBS (Deep Brain Stimulation). Kirsten had the implant in February of 2025 and considers herself cured from dystonia with this device. Listen to this intriguing talk about her story. What she has tried and the amount of money she has invested in her health is astounding.
Links: Doctors - https://www.cabrini.com.au/find-a-doctor/a-profwesleythevathasan/
DBS - Deep Brain Stimulation https://www.ninds.nih.gov/health-information/disorders/deep-brain-stimulation-movement-disorders
and info on the Boston Scientific site (the implant Kirsten has received)
The information shared in this podcast is not intended to diagnose. recommend nor treat medical conditions. We are not licensed medical professionals and do not take the place of your team of medical professionals.
You can find us here: Julie Bergfeld - julie@juliebergfeld.com and juliebergfeld.com (@juliebergfeldcoaching) and JoJo Fraser - joellef510@gmail.com
